Recent Publications
- Marsh Vicki, Kamuya Dorcas M, and Molyneux Sassy (2011) 'All her children are born that way': gendered experiences of stigma in families affected by sickle cell disorder in rural Kenya Ethnicity & Health, 16(4-5):343-359.
- Marsh Vicki, Kumaya Dorcas, Parker Michael, and Molyneux Sassy (2011) Working with concepts: the role of community engagement in international collaborative biomedical research Public Health Ethics.
- Abuya TO, Fegan G, Amin AA, Akhwale WS, Noor AM, Snow RW, and Marsh Vicki (2010) Evaluating Different Dimensions of Programme Effecrtiveness for Private Medicine Retailer Malaria Control Interventions in Kenya PLoS ONE, 5(1).
- Aubya TO, Rowa Y, Mutemi W, Ochola S, Molyneux Sassy, and Marsh Vicki (2010) Factors influencing implementation of the Ministry of Health-led private medicine retailer programmes on malaria in Kenya BMC Public Health, 10(93).
| vicki.marsh@ndm.ox.ac.uk | |
| Tel | 01865 287887 |
| Contact address | The Ethox Centre, Department of Public Health, University of Oxford, Rosemary Rue Building, Old Road Campus, Oxford OX3 7LF. |
| College | Kellogg College |
Vicki is a member of the Social and Behavioural Research Group at the KEMRI (Kenya Medical Research Institute)-Wellcome Trust Research Programme in Kilifi, Kenya, and is registered through the Ethox Centre for a DPhil in Public Health. Her research aims to take forwards ethical debates around screening for sickle cell disorder (SCD) in Africa in the context of population based genetics or genomics research and health care provision. SCD is an inherited disorder with a high burden of morbidity and mortality in Africa for which diagnostic screening is practised and predictive screening has been recommended. Associated ethical, legal and social implications (ELSI) of genetic screening, including SCD, are well described globally. However, there is relatively little empirical data from Africa on the social and ethical implications of genetic screening to support research and service policy. This research is being conducted in two phases to:
Phase one:Explore ground realities for families who undergo predictive or diagnostic SCD testing, including both affected and unaffected families. This phase draws mainly on 22 in-depth narrative interviews, conducted in 2009 and analysed inductively to identify key social and ethical issues from participants’ perspectives. Quantitative data from a randomized sample of household in 2010 will be used triangulate some qualitative findings.
Phase two:Undertake an ethical analysis around key issues in predictive and diagnostic SCD testing in Africa, including:
· What communication strategies should be adopted during diagnostic testing of symptomatic children?
· Should carrier results be disclosed during predictive screening of healthy populations?
Biography
Vicki has worked in clinical medicine and general practice in the UK (DCH, MRCGP, DTM&H) after graduating from the University of Liverpool. She spent 3 years working in tropical paediatrics in the Gambia between 1981 and 1984, and moved to Kenya in 1990 to support the clinical research programme at the Kilifi centre, which is part of the Oxford Tropical Network. Since 1994, she has worked on community health issues, including the role of the informal private sector in malaria control, and more recently on the role of community engagement in strengthening ethical practice in international biomedical research