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Catherine Heeney
Recent Publications
- Heeney Catherine, Hawkins Naomi, de Vries Jantina, Boddington Paula, and Kaye Jane (2010) Assessing the privacy risks of data sharing in genomics Public Health Genomics.
- Heeney Catherine (2009) Privacy and the identity gap in socio-technical systems In: Handbook of Research on Socio-Technical Design and Social Networking Systems, ed. by Brian Witworth and Aldo de Moor. IGB Global, chap. 8, pp. 110-122.
- Kaye Jane, Heeney Catherine, Hawkins Naomi, Vries Jantinade, and Boddington Paula (2009) Data sharing in genomics: re-shaping scientific practice Nature Reviews Genetics, 10(5):331-335.
- P3G Consortium, Church George, Heeney Catherine, Hawkins Naomi, de Vries Jantina, Boddington Paula, Kaye Jane, Bobrow Martin, and Weir Bruce (2009) Public Access to Genome-Wide Data: Five Views on Balancing Research with Privacy and Protection PLoS Genetics, 5(10):1-4.
| catherine.heeney@ethox.ox.ac.uk | |
| Tel | 01865 287887 |
| Fax | 01865 287884 |
| Contact address | The Ethox Centre, Division of Public Health and Primary Health Care University of Oxford, Badenoch Building, Old Road Campus, Headington, Oxford OX3 7LF |
Catherine’s first degree was in Philosophy from Dundee University. She obtained a Masters in Philosophy from Liverpool University in 1999. She then undertook an ESRC PhD Case Studentship at the University of Manchester in the Centre for Census and Survey Research, in Sociology, she was jointly supervised from the Office for National Statistics. The doctoral research was on the Role of Privacy and Confidentiality in the work of National Statistical Institutes. Catherine also spent two periods of research, as a Marie-Curie doctoral fellow at the Department of Information Management of Tilburg University; here she explored the developments in technologies for analysing data with and their implications for legal and ethical frameworks for data protection. Catherine completed her doctorate in 2004.
In 2003 Catherine became a research fellow on the ESRC funded Data-Sharing and Privacy project based at Edinburgh University. This project aimed to look at how personal information was shared across organisational boundaries by public sector organisations working in the areas of health and crime prevention. In 2005 she took up a post at ESRC Genomics Policy and Research Forum at Edinburgh University. Here she had responsibility for the work program on the Evaluation of Genetic services, exploring how methods of assessing health technologies for funding will interact with Genetic services as they increasingly come on stream.
At Ethox, Catherine has been carrying out research on the governance of genetic databases and on the ethical issues arising in the context of colleborative scientific networks with a particular focus on genomics. This research has included qualitative research with clinicians, scientists and researchers who use and manage genetic databases.
Catherine is currently on secondment to the Spanish Bioethics Committee. Based at the Instituto del Salud (Institute for Health) Carlos III, which is under the Ministry for Science and Innovation. Here she will be carrying out research to support the production of reports and statements produced by the Committee in response to bioethical issues arising in Spanish society and those affecting the biomedical research community in Spain and more broadly.
